Tuesday I had committed to doing some work outside the home so I got up early and found he was already awake. He's been sleeping in his chair due to his back pain. He looked terrible so I asked him if I should stay home but he said he would be ok. I called him at 1 pm and he didn't answer. I was concerned but thought that maybe he had just decided to spend the day in bed and wasn't answering the phone. I should have known better. When I got home at 5:30 pm, I found him in bed and in VERY rough shape. He explained to me that he had passed out just after 8 am and didn't regain consciousness until noon. He was sobbing as he told me what happened. He said he was scared and thought he was dying. The room had been spinning around and around like he was having a very bad LSD trip. (For those of you "younger" readers, LSD was a drug taken in the 1970s to get really high which sometimes caused bad reactions. You can read about it here.) I sobbed with him and said that I was so sorry that he had to go through this agony. I said that I would rather have the cancer myself instead of seeing him suffer like this. Then he dropped the bombshell. Mr. B said that he was not having any more chemo treatments. He just couldn't handle going through this every week.
Now, I have to say that it did seem very strange to me that he was experiencing such a reaction since his other 3 treatments didn't seem that bad. Or at least two of them weren't that bad. The second one had been hard on him but that was likely because he had a radiation treatment on the same day. I just couldn't understand why he would be getting worse with each treatment. But since this cancer and chemo is a new thing for me and I really didn't have anything to compare to on how he should be feeling at this point of treatment.
I was able to get him calmed down and made him some tea and prepared some supper for him. He got out of bed and came to watch curling on TV. Yes curling...another Canadian pastime.*g* He seemed to be slightly better so I asked him if he would be ok if I went to work the next day. He said he felt better and that I should go.
I was still feeling very uneasy so the next day I called his Cancer Care nurse to fill her in on what was happening. I suggested she call him but I wasn't sure if he would answer the phone if he was still feeling bad. Thankfully he did and she called me back to give a report. She wanted him to go to emergency but he refused. She stressed to me that he should go right away so after some discussions with my daughter, we decided we would take him in. I called him back to let him know we were coming to get him. To put it mildly....Mr. B was NOT a happy camper. He said to me, "Don't I have a voice in this decision?" And I responded, "No". He hung up. :-(
And so we started our ordeal of a 5 1/2 hour wait in the emergency ward to see a doctor. And then another 5 hours of tests. His heart was fine which is what I was expecting was causing his discomfort. But what was discovered was that he had multiple blood clots in his lungs. The doctor prescribed an injection of blood thinner and said he would need to stay in the hospital for a few days.
Today we were able to talk to his assigned doctor and ask him some questions. The doctor said that Mr. B was likely passing a very large clot on Tuesday morning and that's why he felt the way he did. He said that he was a very lucky man that the clot didn't stay in his heart and cause a heart attack. He said it was a life threatening event. I was stunned. How come I never knew about blood clots and Multiple Myeloma? I've read TONS of web pages about MM and not once do I remember reading anything about blood clots or their symptoms!
Read about blood clots in lungs here.
So it looks like Mr. B has agreed to go back on his chemo treatments for now. Hopefully we don't encounter anymore life altering events. :-(
Have I mentioned that I'm ready to get off of this carousal?